Reply To: IVIG Shortage

September 20, 2019 at 6:57 am

I’m in a similar situation. I was diagnosed in July with CIDP. Insurance has approved IVIG but it’s not available because of the shortage.

My neurologist put me on 60mg/day of Prednisone, then reduced to 40mg after my last visit. At 60mg I was hyperactive but it was improving things. Since the reduction I’m seeing at best stability but I’m also seeing some fatigue return. The worst part is it is wreaking havoc with my glucose levels, with huge spikes (often over 300) and a big crash later in the day.

I suggest reading up about the steroids. They help but continued long-term usage can create a lot of problems. I’m hoping to at least try the IVIG to see how well it goes.