Reply To: Anyone in Santa Cruz or Bay Area

September 16, 2019 at 6:10 pm

Thanks Mark,

Sorry for the late response, thought I had responded via email, doesn’t seem to work that way.

Saw your previous response, great to hear a success story.

I’m in the trenches now, losing strength in my legs for the last four months, started prednisone 3.5 weeks ago, was scheduled for IVIG last week, but it got postponed due to the shortage.
Where were you able to get IVIG through the guys up in SF? My current Neuro is in Mt. View and I live in Santa Cruz, which makes things a bit complicated. Debating switching to local SC neuro, as seems necessary to get IVIG here locally, vs going to Stanford(Which is on the center of excellence list) or Forbes Norris.

Thanks again, my email address is micahrodler@gmail.com if you don’t mind to send your email address there, Ill reach out with more questions, if you don’t mind. Micah