Reply To: Newly diagnosed GBS and terrified
Thanks for your replies. I really appreciate them. Jon, I am so sorry to hear you are suffering from the band as well. My GBS symptoms started on 7/15, so I have been dealing with the band for less than a month and I am already done…I can’t take it the pain. I am also a stage 4 cancer patient (the GBS was caused by my cancer treatment) and I work with a palliative care team as part of treatment. I see the neurologist on Monday and if she doesn’t have a solution for the pain, the palliative care team wants to admit me to the hospital and work to minimize the pain. I’m lucky that my providers are taking the issue seriously. I can’t love with this. The numbness and pain in my extremities is tolerable….the iron band is not.
Thanks again for answering, it makes me feel not so alone to know someone else is experiencing this.