Reply To: Newly diagnosed GBS and terrified

August 7, 2019 at 9:06 pm

Hi! I was diagnosed almost 7 yrs ago. I’ve heard of others with the band of pain or tightness around the torso. The first time I experienced something similar I thought I was having a heart attack, but I’ve broken ribs in the past so it was probably rebound pain from that.

You are still very early in the GBS experience… improvements come in fits and spurts. Some people have a lot of pain consistently. In my case, I have lower back pain (from the spinal tap? from a previous soft-tissue injury’s rebound pain?) and my feet and lower legs were in insane pain when I was first learning to walk again. Everyone is a little different… Fatigue is a new normal. Hands were numb- had to learn how to do everything again.

I’m sorry to hear about the cancer, too. I hope you’ll be able to get the rest you need.