Reply To: Say Hi To the New Guy
July 27, 2019 at 4:02 pm
Everyone, it’s great to have even a small community to discuss this as there are so few of us.
I saw my neuro a month early and confirmed that I am getting weaker. Numbness reaching my ankles now. We’re going back to ivig while retaing 40mg of Prednisone. If I continue to get worse we will try Rituximab in October.
Regarding steroid side effects, I take my BP meds at night, plus melatonin 10mg plus cbd drops and I sleep like a baby. Recent blood test say I’m close to diabetic but dropped 15lbs to compensate. Nothing to do with the moon face and swelling feet though. And eyes always teary.