Reply To: Granny seeks help for Mentally disabled and deaf adult/child with CIDP

December 20, 2018 at 9:31 pm

I’m bowing to you over the internet.
My uncle spent his whole life institutionalized or in group homes… well over 65 years.
Appointment fatigue is hard enough when a patient can fully understand what’s happening.
I was sitting here reading your story over and over thinking I have nothing to offer, but then I had an idea. (Okay, I’m on the GBS end of things, so if I had IVIG I don’t remember because I was asleep a lot while I was in the hospital and things are still a blur.)
Has he ever had a weighted blanket? You didn’t say what his mental challenges are, but these blankets are supposed to be quite calming. Even a lap-sized one could help. ??? And maybe some dexterity play-do stuff to squeeze when frustrated?