Reply To: Granny seeks help for Mentally disabled and deaf adult/child with CIDP
I’m bowing to you over the internet.
My uncle spent his whole life institutionalized or in group homes… well over 65 years.
Appointment fatigue is hard enough when a patient can fully understand what’s happening.
I was sitting here reading your story over and over thinking I have nothing to offer, but then I had an idea. (Okay, I’m on the GBS end of things, so if I had IVIG I don’t remember because I was asleep a lot while I was in the hospital and things are still a blur.)
Has he ever had a weighted blanket? You didn’t say what his mental challenges are, but these blankets are supposed to be quite calming. Even a lap-sized one could help. ??? And maybe some dexterity play-do stuff to squeeze when frustrated?