Reply To: Help, newly diagnosed 5-24-18

May 25, 2018 at 10:30 am

Hello there,

I don’t know what you should do about your job, to be honest…but I would get treatment in any way you can. I waited a year before I got treatment because I didn’t want to admit that I have CIDP. I am now using a wheelchair most of the time, can only walk short distances, have trouble with stairs, my bladder incontinence is worse, my eyelid is starting to droop on one side, have extreme neuorpathy pain, etc. It has definitely gotten very bad, to the point where I went to the ER one day and they admitted me to the hospital.

I know your job is very important but I don’t know, maybe talk to your employer? I am not sure…I just know that treatment, early, is so, so important.

Good luck! Solidarity.