Reply To: No improvement after almost 5 months

April 28, 2018 at 5:30 pm

Your son’s conditions include a lot of variables.
He was diagnosed with leukemia: Had he been feeling “ill” or was he diagnosed following a routine check-up during which something was discovered? (I apologize; these things are not talked about in my family even though we have a history of cancer.)I bring this up because he was possibly either feeling poorly to begin with or the diagnosis was a shock to his system.
GBS has knocked plenty of us barely conscious (or worse) even when we were very healthy just hours before… I was on a ventilator for a week. I don’t remember having any pain but I felt like I’d just been shoved through a colander. Twice. Then rolling-pinned.
I don’t know much about the paralysis, but I have read about people being hospitalized for 6 months, maybe more. Each person’s experience is so very different. The lingering effects are also random.
This little bit has taken me a long time to write. It is difficult to come up with the words you need to hear when I wish we all had magic wands.