Reply To: Anyone with Sensory Predominant CIDP?

I got through the loading-dose okay. on my second infusion 3 weeks later. I started noticing small bumps on my forearms, shins. This was a sign that I ignored. They got a little worse and were itching pretty bad. I was afraid to say anything about a little bumps and decided I will see if it gets bad. Well the next infusion it went into high gear.

I had to do a 3 day course of prednisone. They next tried stretching the interval to 4 weeks with a lower dose prior to my infusion, in my IV.

I have been on that for 6 months now and am slowly getting better every month.
I takes time and the treatment are kinda tailored to you condition and results.

I been to 3 neurologists before finding out about CIPD. So keep informed and don’t be afraid to ask questions.

There is a wealth of information here as well as support. Hope all goes well with you treatments! This is a long haul, but you CAN get through it!