Reply To: Long Newcomer Story/Guidance Needed
Is UTSW where you went this center of excellence?
UT Southwestern Medical Center
5323 Harry Hines Blvd.
Dallas, TX 75390
Yes, or no it’s often been stated on this website that peripheral neuropathies are difficult to diagnose. Your report of “…slightly abnormal were the MRI (which showed subtle enhancement related to the ventral nerve roots at the level of L1)…” reminded me of another post a few weeks back.
Recalling, here it is- “MRI allows identification of enlarged nerves in hypertrophic polyradiculopathies.” Not to pretend to be diagnosing merely comparing similar wording from the posts of two patients with difficult diagnosis.
If UTSW has left you wanting, try-
University of Texas Health Science Center at Houston
UT Physicians Neurology Clinic
6410 Fannin Suite 1014
Houston, TX 77030
It is not unusual for spinal taps to initially come back normal. It is unusual to have feedback on an EMG without also having Nerve Conduction Velocity tests.
Oh. Advice. Yes, get a substantiated diagnosis and ask about the benefit of IVIG.