Reply To: HELP! FEEL SO LOST IN ALL OF THIS

March 16, 2018 at 10:36 pm

Hello, Amysplawn.
I was diagnosed with CIDP Nov. 2017 because I finally had a spinal tap.
January 2016, I had EMG testing and my Emory St. Joseph neurologist suggested a spinal tap as another diagnostic tool, but I chose to wait because the symptoms were only in my feet and legs and it seemed I had PN, a non-treatable condition. Because I put off the spinal tap, I experienced more nerve damage and many more life-altering symptoms.
January I began IVIG, and am now experiencing some improvement.
I wish you well in finding a diagnosis.