Reply To: HELP! FEEL SO LOST IN ALL OF THIS
Was the MRI performed with and without contrast? Has anyone suggested a lumbar puncture (spinal tap)? That is typically performed during the diagnosis process for CIDP. Another test is a skin punch biopsy. Was your NCS performed on all 4 limbs? Will the next one be?
Are you aware that this Foundation has identified Centers of Excellence with doctors who have shown an interest and competence in CIDP? Is it possible for you to be seen by one of these physicians?
Your positive response to steroids seems to warrant further investigation to see if more is helpful. It may or may not be something you wish to be on long term, but it can be helpful as a treatment and also in diagnosis.