Reply To: Recent CIDP diagnosis

February 19, 2018 at 12:46 am

The tapering of the Prednisone does seem rapid to me, as I took it for about a year, as I recall. But treatment for CIDP must be individualized, as there is a lot of variation in cases and in how individuals respond to various treatments. Some people have trouble with Prednisone, but it never bothered me. As the Prednisone was tapered down, I was put on My ophenolate Mofetil, which I took for two or three years (I forget, exactly).

It is common for symptoms to persist in the feet. My case is not active, but I have permanent residuals in my feet. At home I seldom wear shoes or socks for that reason. When I am out, I can walk normally but the more I walk the more my feet hurt. I just live with it.