Reply To: Really Bad IVIG side effects

Dee Costa, people often have fatigue and headaches after treatment. For my maintenance doses, the headache often appears about ~4-5 days after treatment. I don’t think a loading dose of IVIG would offer immediate relief of neuro symptoms and I don’t think it would cause them as a side effect either. Your husband should rest and let his body process all of that IVIG. It’s a big strain on the immune system. My neuro asked me to commit to 6 months of IVIG before trying to determine if it is working or not. There will be ups and downs, but it’s the overall long-term progress that’s important. I wouldn’t take his walking difficulties now as a sign that he will always have problems or that the treatment isn’t working. You’ll need more time and treatments to determine that. Best of luck.