Reply To: Recently diagnosed cidp

February 10, 2018 at 12:46 pm

My nerve pain is not as bad as it was last fall, probably the high point pain wise. It has not been as bad since the steroid treatment in late December. The scary part is the weakness. I am growing weaker and weaker. I walk close to normal in the mornings, when I have the most energy, but by 2P or so, I describe my walking as, “like a caveman”. I slap my feet down very flat footed, rather than heal toe, heal toe. I am still working, I’m trying very hard to make it to April 30th when I will receive bonus for 2017.
Good news is, I was approved for IVIG today. It’s been seven weeks. I had to get involved with the insurance company and my Dr’s office to ask Dr’s office to send the needed clinical notes to the insurance co so they could make a determination. One would think the Dr’s staff would know this since he boasted about prescribing this close to 1000 times.
Does anyone know if I will be able to get off Lyrica (600MG/day) when I start the IVIG treatment?