Reply To: Was I misdiagnosed? Here's my strange GBS story.
I was finally, properly diagnosed today. My new neuro knew exactly what it was the second I walked into his office: Sensory Polyneuroapthy, a form of GBS. I was diagnosed via EMG and NCS, not spinal tap, which I had refused. This neuro said i did not even need one and the NCS and EMG were the golden standard of diagnosis. So…My stubborn instincts were correct. I just had to find a doc who knew what the hell he was doing. He was also smart enough to treat me empirically with steroids to calm some of the massive inflammation which helped immensely.
I DO have a mild case…But a mild case that’s went untreated for nearly 5 months and spread into my hands and arms. The good news is, it can be tamed and shouldn’t worsen. Bad news, it’s going to take time.