Reply To: Anti-MAG treatment update
Thanks for the info on the Anti-MAG Facebook page and other links to the Anti-MAG studies and potential treatments. With Rituximab, Obinutuzumab and the Polyneuron drug, we have more hope for an effective treatment! I joined the Facebook group and asked how we can sign up for the IMAGINE study.
Currently, I have been receiving IVIG infusions for 6 weeks. Although there have not been many good results reported on the Internet with IVIG treatment for people with anti-MAG neuropathy, during the last 1-2 weeks I notice my walking is faster and I can walk fast enough so I don’t look like an “old man.” Maybe balance is a bit better, too. But the neurologist said 6 months of IVIG treatment is needed to decide how much or if IVIG will help. I will post my progress here.