Reply To: Anti-MAG treatment update

Thanks for the article.
It is very troubling that Medicare doesn’t cover the use of Rituxan for treating MAG when it is the only drug that has any success in stopping the progression. My anti-MAG titre is over 100,000.

It is not covered by Medicare because Rituxan is not listed in something called the compendium for the treatment of MAG. Using Rituxan is an “off label” for MAG. Unlike IVIG infusions covered under Medicare part B, the use of Rituxan for MAG has the potential (if one is successful with the appeal process – both my initial appeal and subsequent appeal have been denied) of being covered under Medicare Part D.
In one of the prior posts, Jim stated that he was covered by Medicare Part B. I asked for additional info but haven’t heard further. Jim, please share your secret.

I find it very difficult to deal with this insidious disease and do not welcome the additional stress in attempting to obtain medicare coverage.