Reply To: Anti-MAG treatment update

January 6, 2018 at 2:22 pm

To Ile, Heidi, Peter, etc. Thank you for welcoming me. Some of you wanted to know about plasma exchange. Had central Cath and it helped stabilize progression, but wound up hospitalized twice with serious infections. My neurologist then put me on cytoxan. That also stabilize me. For tracking my progress I used walking on a track. My husband recorded and graphed all of my progress during this time. We took it to our neurologist so he could see progress or regression. A few years after the cytoxan my times on the track went down. Neurologist did not want to put me on cytoxan again and that’s when he decided that Rituxan would be the best and that it was a promising treatment for anti mag. And presently waiting to hear if Insurance approved it. I am going to request a nerve conduction study since it has been years since I’ve had one. Good idea from Peter.