Reply To: Anti-MAG treatment update

January 1, 2018 at 9:39 pm

Hi Heidi,

Thanks for the info about your ankle/foot orthotics. I checked out the Ottobock website and the Walk on Flex model 28U22 seems to be a nice design for light to moderate foot drop. By the design, it looks to me like it could help support weak ankles from rolling sideways on uneven surfaces, too. But like you said, the Rituximab could be helping too! I read that it takes months for myelin and nerve function to regenerate if you get those benefits from the infusions which Rituximab has been found to provide.

I just started IVIG and going for round #2 next week but was told by the doctor to wait 3 months for any improvement (if it occurs). So I guess I will wait until my follow up appointment and ask about the ankle/foot orthotics you have. They mentioned some “knee to foot” orthotics but those seemed like overkill for my current condition. But I understand what you mean about needing to “stay focused” on your feet on uneven surfaces. I have a lot of trouble balancing and not rolling my ankles while walking on dry sand on the beach where I walk a lot, but walking on the wet sand along the water is no problem.

When did you have your last Rituximab infusion? I read a study online that found maximum improvement for anti-MAG cases was not reached for a median time of 9 months after the Rituximab infusion.