Reply To: Anti-MAG treatment update

Welcome Peter to this “select” group.

I have been on IVIG for over a year. I stopped twice – once for 1.5 months and once for a month to see what would happen. What happened was that the pace of disease accelerated w/o IVIG. I was/am on an every 3 week regime of IVIG as I am trying to get coverage from Medicare for Rituxan, an “off label” use for Mag. Jim – how did you get coverage?
Rituxan has a 30% success rate but I don’t know what parameters determine success.

A different question – Have any of you had your level of Vit. B 12 tested and was it high?

Happy New year to all
Ila