Reply To: CIDP – Standard Treatments Not Working – Anyone else?

Hi people Happy Holidays! So I just came from my 5th nerve treatment..The ivig.. plasmaraphesis.. Its not working,Extremely frusturating.My doc tells me to double up on the nortripticline at night.That hasnt helped taking just one dose,just lets me sleep.I am going to one of the best hospitals in nyc.Hospital for spec surgery.This does not seem to be going away and I feel deep down hes steering me wrong.I walk with a cane and the treatment hasnt worked at all.He wants to do another session then will weigh options after that whatever that means..Frusturated in nyc..I feel like im going to have this cidp for a long time..