Reply To: Was I misdiagnosed? Here's my strange GBS story.

December 20, 2017 at 11:06 am

Just to be clear-

1. No spinal tap.
2. No EMG.
3. No NCV.
4. No treatment.

From a Mayo Clinic discussion on diagnosing GBS: “Spinal tap (lumbar puncture). A small amount of fluid is withdrawn from the spinal canal in your lower back. The fluid is tested for a type of change that commonly occurs in people who have Guillain-Barre syndrome.
Electromyography. Thin-needle electrodes are inserted into the muscles your doctor wants to study. The electrodes measure nerve activity in the muscles.
Nerve conduction studies. Electrodes are taped to the skin above your nerves. A small shock is passed through the nerve to measure the speed of nerve signals.”

And then, also from Mayo Clinic- recovery- “Although some people can take months and even years to recover, most people with Guillain-Barre syndrome experience this general timeline:

After the first signs and symptoms, the condition tends to progressively worsen for about two weeks Symptoms reach a plateau within four weeks Recovery begins, usually lasting six to 12 months, though for some people it could take as long as three years

Finally, from Mayo Clinic: “There’s no cure for Guillain-Barre syndrome. But two types of treatments can speed recovery and reduce the severity of the illness”