Reply To: CIDP big relapse vs mini relapse?
Thank you BryanF and CER100. My name is Bill F. I can’t thank you enough for your responses. I have begun day 8 today 11/5. As of yesterday I was still miserable and discouraged with a lot of pain. I noticed that Anxiety is a definite trigger for me. Going to hang in and hope. Dr. and Visiting Nurse both said I must have lots of hydration and calm down.
I am extremely grateful for this site, and It would be nice somehow if the system was able to organize not only by topic but by other CIDP types. I looked and I found we have about 14 active CIDP Participants…. Sadly how many more CIDP patients are out there not knowing this Forum exists. Considering that this is available Nationwide there are not many people involved. I think what also happens is Participants start feeling better (hopefully) and no longer visit the site. Alumni so to speak. Its too bad because they could offer so much of their experience.