Reply To: CIDP big relapse vs mini relapse?
I have begun the Ivig process. The initial load was five contiguous days. I tolerated it well. Since the infusion was completed on 10/27 I have felt worse than I ever have. Is anyone aware that that this can happen. How should I feel? Same, better, temporarily worse? Other? I was told by my Neurologist and Infusion Service that the decision process to proceed for each phase is entirely mine. I want to be sure I have as much knowledge as I can gather. This should not discourage anyone about to embark on this process because each person is different. .
Retired, five years on Prednisone with flare ups (pain), still can walk, balance on each foot. have feelings in feet, never fell, work on small home projects. Recent flare up not responding as well as in the past. Decided to try IVig.