Reply To: CIDP Progess and retrosepction (Long)

October 1, 2017 at 7:18 pm

Hi Jcheart,

How long have you had your symptoms?

As a follow up to this post….

By March, I felt like I was regressing, but my Neurologist didn’t want to respond. So I went to get a second opinion. He was rather upset that my original doctor didn’t continue the IVIg. He said it was obvious that the prednisone wasn’t arresting the CIDP.

In other words, he said my neurologist allowed me to relapse and cause more nerve damage.

So I went with the new neurologist and now get IVIg treatments every week.

I’ve regained a lot of energy, returned to work, and even played 9 holes a week for the last month.

But, I still have some tingling/numbness in my hands (especially when stressed) and my feet burn and from the balls of my feet forward, it still feels numb and a stiff. Additionally, at the end of the day, I am exhausted.

I still have a ways to go to say reach 92% of my previous CIDP abilities.

My suggestion is to see if you can get into the neurologist sooner.

Good luck and if you have any questions, feel free to ask.