Reply To: Chicago Area Neurologist Recommendations?

September 8, 2017 at 11:23 pm

I’ve heard some very unhappy CIDP patients (who are getting IVIG at the same infusion center I am) who went to Mayo and felt like they got ripped off with subpar testing. They received no definitive diagnosis and had to keep hunting before they got properly diagnosed. One lady said they did a single point EMG on one leg only, which was inconclusive, and they didn’t see a need to test any further!

See if this link works? If not, just search for CIDP in Facebook. The US group has an image that looks like a partially stripped electrical wire. https://m.facebook.com/groups/2532731679