Reply To: Undiagnosed Adult GBS, mild case?

September 7, 2017 at 4:09 pm

Just to follow up with everyone, I had an appointment with a neurologist today. I sort of got a diagnosis. He said that it was a post-viral syndrome and the its entirely possible that it was GBS, although a very mild case. He said he has seen it all over the spectrum, from very mild to severe. He said that with the proper testing before the symptoms started to resolve, it would have been possible to confirm GBS. At this point it’s really too late to make a positive diagnosis and any tests for demyelination would be painful and really unnecessary considering how mild my symptoms are on the spectrum.

He said that given the mild nature of my case, no treatment was the right course of action. Had they realized it was really a post-viral syndrome, they might of tried IVIG, etc, but that it was better that I did not get treatment because of the side-effects and potential complications.

Anyway, thanks for the support. My recovery is coming along nicely and I’m no longer in pain, though I still have some numbness in my left big toe and some dysesthesia in my arms and legs. I hope this helps someone else understand what they might be facing.