Reply To: New working diagnosis of CIDP, starting pred

July 4, 2017 at 6:47 pm

I’m in a similar boat with “atypical” CIDP. Not a classic presentation, but everything else was ruled out. I seem to be responding to IVIG. From what I’ve read, diseases like CIDP might really be a spectrum that the medical world is still learning about. But if it responds to a treatment, I guess it doesn’t matter what we label it. My neuro was very anti-steroid with the CIDP diagnosis. He had discussed steroids earlier on when he thought it was auto-immune and inflammatory, but hasn’t wanted to touch steroids once he got closer to it being specifically CIDP. Not even for back pain and not even for the orthostatic hypotension (a different steroid, not what would be given for CIDP).