Reply To: Isolation

July 4, 2017 at 5:55 pm

Interesting that you say you are weak and wobble. Jim still does too.

The meet up groups are the same here too, hiking and such but I have seen painting and beading, AKA craft groups.

This foundation did have a day in the park last November with patients and suppliers. It was ok, but I would not say it was a chatty group. We did run into one of his PT’S that has CIDP and never knew it. That was a surprise.

I know about people thinking some one is a hypochondriac/worrier many are, but with this disease you never know when it will hit again, I keep asking what symptoms are we to look for if it is a relapse? More pain and numbness from one doctor, the other stated more weakness. So what is it? One neighbor we have has ALS and they have a group that meets, see if you can get into that group to socialize, bet they let you in. Just remember, we are all in this together!