Reply To: Post Miller Fisher

July 4, 2017 at 9:49 am

I was diagnosed with Guillain Barre Syndrome at age eight. I am assuming it was the Miller Fischer variant (I don’t really remember and my family has since passed on). It started with double vision, like many others. I still get double vision when tired and I definitely have some balance problems. I also have been diagnosed with CIDP now, so it is hard to tell the two apart sometimes. It gets very frustrating.

I also cannot read things sometimes, I don’t really know how to explain it. But if I am trying to read my phone sometimes I have to close one eye. It’s so strange! I feel like it’s definitely a residual from the MFS because I had to wear an eye patch when I had the MFS as a kid to correct the double vision.

Good luck to everyone dealing with residuals!