Reply To: Eyes shut
Hi, I am the wife of a man with GBS who was in a coma for 8 weeks. I was also told that he was in the 1% of most severe cases. My husband presented from the face downward and was on a ventilator for many weeks. In addition, he also had hospital delirium. We had recently moved and I was all alone. I know that it’s hard, but you have to keep hope alive. Every day I went to the hospital with books and music that my husband liked, and shared interesting stories from the news or family members. I spoke to him constantly, but I think that I was also trying to keep myself together. Eventually, and very slowly, he recovered after much therapy and hard work and now is able to walk, talk, and even play golf! We cherish our time together and each other. Have faith, try to not lose hope. Talk to others (or yourself if that helps!) and be kind to yourself, too.