Reply To: Mayo Dr. said GBS a year ago/but gettting worse
GH, thank you for your reply. As to why not CIDP, I assume it was because my blood work was negative. I don’t really know enough about diagnosing CIDP although I have read quite a bit about it.
My concern is that he missed it, and I have no follow up with him unless I “become worse or have another incident”. I am already worse than I was at the beginning however.
I have a Cleveland Clinic resident who is still working with me however I don’t believe she has the experience of the Mayo doctor. I just don’t know what to do at this point.