Reply To: For those who get regular IVIG infusions, how often do you get them?

April 27, 2017 at 9:01 am

I had two IVIG therapies and now insurance has revoked all further treatments due to Dr error in reporting. I saw significant changes after my second round. I am back to severe weakness in both legs. Left leg is much worse. I have severe pain in my left knee that feels like a burning/ tearing feeling when I stand and walk. Manual dexterity has gotten much worse. My Dr claims they are doing everything they can to resolve the issue. I never thought CIDP would get this bad! Does anyone else have these same symptoms ? I’m really afraid what the future holds if I can’t resume my IVIG therapies. I feel helpless and afraid. I look forward to any responses. Thank you to ALL and God Bless!