Reply To: Headaches
My first guess is that the infusion rate is too fast. I get 30g, 300mL which takes 4 hours, Two consecutive days a week for two weeks. One week off then repeat. At first I got it three consecutive days a week but we have been able to get it down to 2 days a week.
My first CIDP doctor, Dr. King Engel (Google him) is an internationally respected doctor for neuromuscular diseases believes that slower transfusions, which tend to prevent headaches, also are more effective in treating the disease.
I can say that, in 9 years of treatment so far I have never had a headache. Plus, we have been successful in preventing things from getting worse.
Tell them to slow it down.