Reply To: recovery experience

April 13, 2017 at 5:53 pm

Today, almost a week out from my second 5-day cycle of IVIG infusions, I’m feeling a return of some of the strength in my legs. Hallelujah! Because of the extensive nerve damage, especially in my left leg (conduction was down to 20% of normal on my test),I had already accepted that my legs and balance were permanently damaged. But suddenly I can walk halfway across a room without my cane, wobbly to be sure, but without feeling as if I’m going to fall. Fatigued, yes. That short walk was exhausting, and I’m going to be careful not to over do it. But I’m thrilled beyond words! On top of the first cycle of infusions getting rid of the worst of the nerve pains in my legs — well, I never expected this to happen! I hope every one of you will experience this, if you haven’t already. This is a dreadful disease, and I wish it could be wiped from existence.