Reply To: Joel, 3 years old, first 72 hours…

Hello. My son is six and was diagnosed with GBS March 20th and so this is all new to us also. He was released from the hospital April 7th. His had affected his upper and lower extremities and for a few days he experienced bowel and bladder incontinence and some difficulties swallowing. He had started with steroid treatment at first because they did not diagnose him with GBS initially. After no improvement with steroid therapy we had requested a neurologist and were blessed to be paired up with a different one that agreed with us that there was something else going on. He did three days IVIG therapy and Wow! What a turnaround he has made. There is hope and my biggest advice is to go with that parent “gut feeling”…we know when there’s something not quite right with our kiddos. We are currently doing outpatient PT/OT three times a week and will be traveling to Iowa City Children’s hospital to see a Neuromuscular specialist and Nephrologist due to his blood pressures being elevated. I will pray for your son and family.