Reply To: Headaches

April 11, 2017 at 11:15 am

Only 6-7 hours for 70 grams is very fast, and a big dose. i thought 5 to 6 grams per day was the most any patient could tolerate. My daily infusions, the time the fluid is actually going in, last three and a half hours each.

My headaches start with the third day (of 5 days) of infusion) and last for three days after I finish. I also have nausea and barely eat anything on those days. My veins are small and have trouble holding a needle (it can’t be left in overnight) so the nurse has had to change the needle at least once each day. This past Friday, I needed 5 changes to different veins. I have painful bruises on both arms. Sometimes I wonder if it’s all worthwhile, then I remember that the alternative is being crippled for life.

Have you felt much benefit yet?

Thanks for your response– I want all the info I can get, and it’s hard to come by.