Reply To: Does anyone have more than one immune disorder?
Welcome to the forum. You may be aware of the Immune Deficiency Foundation.
Their website is: http://primaryimmune.org
They offer a physician locator service at: http://primaryimmune.org/services/locate-a-physician/
However, do your own web search for Immunologist and you’ll likely get the same list the IDF will send you.
I too have CIDP and I believe that I developed a compromised immune system characterized by very low IGg levels after taking immunosuppressants.
However, I see an Immunologist for the immune condition, not a neurologist. Those are two distinct specializations. The only interaction between the two diseases that I just made up is that they are part and parcel of the same system but act through different agents.
A quote from the IDF: “Common Variable Immune Deficiency (CVID) is one of the most frequently diagnosed primary immunodeficiencies, especially in adults, characterized by low levels of serum immunoglobulins and antibodies, which causes an increased susceptibility to infection. While CVID is thought to be due to genetic defects, the exact cause of the disorder is unknown in the large majority of cases.”
Notice the generalization… ‘thought to be due to genetic defects…’ Maybe so, but mine did not manifest until the various CIDP treatments were in play.