Reply To: For those who get regular IVIG infusions, how often do you get them?

April 5, 2017 at 3:28 pm

No, I don’t take immune suppressants. I have hypoglobulinemia and my body is unable to produce much in the way of gamma globulin antibodies in the first place. I can’t take high doses of steroid because I have osteopororis and auffered serious bone fractures in 2015. My sacrum is criss-crossed with seven enormous surgical screws/rods to hold it together, and I have fractures in my pelvic ring that never healed properly because of the condition of my bones (my surgeon compared my bones to soda crackers). Steroids would weaken my bones further, and so would so e other drugs. I had never fully recovered my ability to walk unassisted, and was still in constant pain, when the neuropathy hit me, The last two years of my life have been oure hell.