Reply To: For those who get regular IVIG infusions, how often do you get them?
My doctor prescribed a 4 day loading dose of 2g/kg (so 0.5g/kg/day), then doses of 1g/kg every 4 weeks. My research shows this is a fairly typical protocol. Insurance approved every 3 weeks. My MD prefers every 4, but the approval at 3 weeks is nice because it gives me a day or two of wiggling room when scheduling. I’ve only had the loading dose and two maintenance doses, so I don’t feel qualified to answer how it’s working. But I can say I have side effects for 1-5 days after treatment, and the maintenance dose headaches are nothing compared to the loading dose severe migraines.