Reply To: Plasma exchange time to improvement?
Yes, by all means, if you can be seen at a Center of Excellence that would be beneficial.
I consider this quote from
- Ther Adv Neurol Disord. 2012 Nov; 5(6): 359–373
to sum up a lot of things:
“Although guidelines for the diagnosis and treatment of CIDP have been developed, the large variety of clinical and electrophysiological variants, associated systemic conditions, and lack of sustained improvement with standard treatments in up to one third of cases provide challenges to the clinician in practice.”
The detailed answers to some of your questions are covered here:
and here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3487533/
I hold a vague recollection that multi-focal motor neuropathy (mmn) responds poorly to prednisone and it has CSF protein: Mildly elevated in 33%.
You’re on the right track to find good doctors to help you sort this out.