Reply To: Axonal Guillan Barre (AMAN)

February 16, 2017 at 6:58 am

Jim – Oh, dear ! Talk about taking the good with the BAD! Heightened nerve pain and EXTREME lower leg numbness has really affected my walking, but your mention of “shaky nerves” confirms that this is a common side effect. So far, other than nerve pain I have the fat face happening (but, actually – it makes me look younger ! Trying to figure out a way to keep that going).

I do love hearing that it STOPPED the CIDP and truly hope that continues while you deal with all of the other problems: At least they are “treatable” !

Thank you again!