Reply To: Undiagnosed – unusual deterioration course

Jim, I am so glad I came across this forum. I have never joined a forum of any kind before, so I was reluctant/ but desparate. So glad to know there is a liaison in Akron. I am also thankful for the Overview publication link you sent. In my search, I was just getting pieces. And Robert, thank you for your input, this has been a very discouraging experience, I know I need to have another opinion, Cleveland clinic has always been in the back of my mind. I was hoping I was just “crazy” and it would go away, but after a year of multiple doctors, and very few answers or relief, it’s time. I’ve found that even my family and close friends don’t understand, for me the flare ups as I call them are unexplainable even to myself. Thank you both again,I really do appreciate the help. Carla