Reply To: How do the long term steroids affect you?

January 30, 2017 at 8:42 am

I was put on steroids at first too and had the same problem. I felt like i was going crazy and could not sleep. I insisted I be taken off them and put on IVIG. It has been 5 years since I was diagnosed with CIDP and have been on 35 grams every 4-5 weeks of Gammunux and doing fantastic. I have hardly any symptoms of my CIDP as long as I get my infusion within the 4-5 weeks. I have not had any further damage to my nerves either. So I would talk to your neurologist about putting you on a maintenance dose of IVIG and see it that is better. I was so miserable on the Pred that I decided I would never go back on that stuff again. Good luck to you.