Reply To: Recently diagnosed with CIDP

January 16, 2017 at 1:07 pm

I’ll respond to your questions in order.

It seems you have already seen some improvement. That’s a good sign. It is not possible to predict how complete recovery will be, so you should just think about getting a little stronger each day when you are in rehab.

Your question about nerves should be rephrased: did you get treatment early enough to avoid axonal damage? Demyelination generally heals quickly and well, but recovery from axonal nerve damage is slow and may never be complete.

There are immune suppressants (I took one for a couple of years). Your neurologist knows about all the standard treatments. You should discuss the entire treatment plan and options, but leave it to the neurolgist to decide whether you need any particular medication.

Pain management can be difficult. I anted to get off pain meds as soon as possible and found I did not need them after I started recovery. Others here have more experience with this.

Xanax is a sedative used to treat anxiety. It does not have any direct effect on nerve healing.