Reply To: A lucky story GBS/MF mixed
I am so sorry to hear that you are still chair bound. My reason for documenting my situation was to give my own opinion from my own experience and it just seems logical to me that given IVG stops the T cells doing more damage the longer you leave it the more damage is done. In fact here in UK there are no clinical staff on weekends which in most peoples opinion is crazy. In my case I lost these two days before the IVG was administered otherwise it would have been 5 days from contracting the syndrome to IVG. Those two days were exponentially bad and the difference from Friday to Monday morning when I saw Consultant was frightening. This is what I base my opinion and advice upon.
I really wish you all the luck in the world Jim with your recovery as this is a terrible thing to happen to anyone and it seems hardly anyone in the general public has even heard of it, I had not.