Reply To: Miller Fisher – Double Vision worsening!

December 18, 2016 at 12:03 pm

Similar to heeljeff, I experienced the same. My diagnosis being Miller-Fisher, the damage was descending, starting in my vestibular system and eyesight, with mostly upper body involvement. I remember thinking, “Today, I’m going to wash some windows” during my recovery at home, and started in with my normal mode. After twenty minutes, my entire upper body muscles went into acute fatigue and borderline numbness. It took me 48 hours to return to my baseline, with normal, altered strength. However, walking I was fine, all lower body. So weird… it certainly taught me where my limitations are! 16 years later, I still have not returned entirely to my pre-GBS self, but I’ve adapted to these things and now little/no bother. I just have to watch myself, and be realistic as to what I can and cannot do.