Reply To: Miller Fisher – Double Vision worsening!

December 11, 2016 at 11:52 pm

Interesting info, thank you! After 9 months of gbs recovery, I’m left with some pretty bad strabismus and what my orthopedic surgeon calls ‘no extrinsic extensors’ in my hands.
I’ve had a fresnel for most of the last 9 months with no improvement. My neuro-ophthalmologist has referred me to an eye surgeon, while my regular optometrist is pushing ‘vision therapy.’
My emg neurologist says I have lost function, but give it another 8 months to see where it ends up.
I don’t know what to do. It seems even my specialists are in uncharted waters when you say ‘guillain barre.’ Certainly my optometrist has never seen it.
No one wants surgery but vision therapy is $5000 out of pocket for me, and depending on who you ask, some say this is snake oil, with zero chance of working.
Any suggestions??