Reply To: Miller Fisher – Double Vision worsening!

November 20, 2016 at 12:24 pm

You were blessed you found that therapist, so happy that worked out! Yes, I’ve known of relapse, but super rare, even with mainstream GBS. I’m wondering, do you experience any residuals from your MF experience at all on a daily basis? Even after sixteen years, I have balance issues, mostly motion sickness. I simply cannot drive in a car as a passenger, so I’m the designated driver fulltime! I cannot do boats or amusement park rides, and have dizziness often when I’m in a crowd and have to do a lot of head turning suddenly. My doc says that I don’t visually process as well now, it simply takes a lag of time for this to take place via damaged nerve paths. Even in shopping malls or stores, I can reach this stimulus overload point and just have to sit/lie down and recover. Overall more fatigue than before, especially upper body. Definitely an altered normal, but it’s all doable, for which I’m grateful.